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Autism Conference Next Weel

For those in southern California next week, I will be speaking at this conference and signing my soon to be released book.  Very soon it will be for sale on Amazon and I will keep you posted.

As my book gets closer to publication, I will be sharing some essays written by people who know me to introduce me to people who do not. Today I am sharing what my friend, Cathy Gomez, wrote. Cathy was my aide in school for the past two years.

As Ido’s Behavior Interventionist for four years, I was initially able to see him communicate with his mom every time I did a home session. It was very fluid and natural. I also went through the process of training to communicate with Ido. It was very difficult at the beginning because we had to build trust and a relationship. Ido was so anxious, but that slowly lessened. We practiced every other day and each time we got a little better until we reached the point that he was able to fluently communicate his thoughts to me. I was able to see the progress as well as Ido’s frustration when I misunderstood him. Recently it has been so exciting to watch Ido type on his iPad. The iPad will allow Ido to become more and more independent in so many more ways.   

Ido’s greatest strength is that he is resilient. He wants to experience and do things, just like you or I, even if they are more difficult for him. It takes a lot of courage to be mainstreamed in all regular classes, knowing that he will be the only student like him. Ido’s greatest challenges are controlling his emotions and body. He has a more difficult time managing feelings because they tend to quickly escalate. However, even when emotions are high, Ido is great at staying reasonable and listening to logic.
Working with Ido for the past four years, particularly the past two, when I was with him throughout the school day, has affected me significantly. He changed everything I knew about autism and people with disabilities. I was supposed to be the educator, but he has taught me more than I could learn from a professional.  In college I learned that autistic people can’t have empathy, which is a ridiculous notion. I now view people with autism or other disabilities the way I would anyone else. Ido has shown me that he isn’t held back by his disability. He goes hiking, likes to joke around, wants to learn new things, and reads faster than I do.

Guest blogger- Introduction to Ido

As my book gets closer to publication, I will be sharing some essays written by people who know me to introduce me to those who do not. The first is by Tami Barmache, lovely friend, and mother of a son with autism.

I remember meeting Ido’s mother, Tracy, at a mom’s night out. She was describing that while Ido was unable to speak, he was communicating by pointing to letters on a letter board. I had never heard of such a thing, was fascinated and wanted to learn more. I, too, had an autistic son who was not able to speak.
As the mother of a child who often cannot communicate his thoughts to me, watching Ido on the letter board, and now his iPad, has always been nothing but a pleasure- liberating. It is sometimes difficult to reconcile the differences between how Ido presents himself to the world, and the words and ideas that he spells out on the letter board or keyboard. There is something that tugs at you and says, “It just can’t be.” But then you see him, over and over again, spelling out his thoughts that are clearly his. It is not Ido’s job to prove himself to us. His challenge of remaining in control of his body to the best of his abilities is enough to face every day. We are the ones who have to find a way to overcome that incongruence, and kick through the barriers and limitations that skepticism creates.
Ido has many strengths, but the one that stands out for me is his perseverance. He says that his mom was relentless in her efforts to bring communication to his world. He was along on that ride, and was hungry to learn and communicate. He is strong, determined, and wise beyond his years.
I would imagine that Ido would say his greatest challenge was living a life without communication. Now he is able to convey his thoughts, feelings, struggles and successes. He has the ability to find his way through difficulties with the help of those who love and believe in him. He continues to face other challenges, such as gaining better control over his movements, and reaching other families and professionals.
So little is understood about autism in general, and specifically about individuals with limited communication.  Ido is very articulate, and has a vivid and clear way of describing his experience with this very difficult disability. With these insights, we can go beyond all of the technical terminology and the need to “fix” everyone. Ido can give us a window into the world that we, as parents, long to know so much more about. Professionals owe it to their students, clients, and patients to listen to what Ido has to say.
One day I was sitting under a beautiful tree in a park with Ido and his mom. I was frustrated and confused about what might be going on with my son. I always turn to Ido as my “go-to guy” in order to get a little bit of insight into my little guy’s world. After patiently answering some of my questions, Ido spelled out on his letter board: “Autism is a deep pit. Don’t give up.” I think of those words regularly and they give me strength. I will never give up. Thank you, Ido.

Relaxing Chefs

I love to unwind watching my favorite chefs. I have some tapes I’ve seen over and over. If I need true relaxation I watch Jacques Pepin, master chef, teaching techniques or recipes. I imagine all the dishes in my mind. I love the really knowledgeable, talented, ungimmicked chefs. They never pretend to be hilarious, or have personalities bigger than their  recipes. They are just knowledgeable, interested in what they do, and fun to watch.

My second favorite is Ming Tsai who fuses Asian and Western cuisine. Third is Italian chef, Lorenza DeMedici. Her recipes look so delicious I really would like to try them all. I like watching them and listening to them enthusiastically teach. It is the best method to relax.

Condolences

I heard a crazed man murdered people at a Batman screening. I want to express my sympathy to all the relatives and friends of the dead. I hope those injured heal quickly, body and soul.

A Visit With My Grandma

Today I saw my grandmother. She is not the same woman in a lot of ways because inside her disease is sort of devouring her. She is too weak to walk so she needs a wheelchair to go anywhere. She is tired, like a deep weariness I never saw before. Her spark is not as bright, but it is still there at times. I thought about her being a beloved human being and a genuinely great mom and grand mom. She has overcome overwhelming challenges in her life. I saw how she coped with humor and smiles after operations in the past, but this time it’s much harder. Her illness is advancing. We can’t stop it and her body is too weak to continue fighting all the time. I think and think about how I will cope when she is gone. I know it will be so so so sad. The one thing that gives me happiness is that she is surrounded by loving children and grandchildren. It is lucky to have lots of people who love you. She is deserving of that because people felt loved by her too.

A Request to My Readers

Dear Readers, Recently my book was being considered by a publisher. They loved my writing and were excited about my book. The marketing division decided that I am not well known enough yet. They want to see my number of fans and blog readers increase. If you enjoy my writing and want a chance to learn more about autism in depth from my book, can you help me spread the word about my blog and facebook page to the people you know who would be interested? Thanks, I would be very appreciative.

To Flee or Not to Flee

I love hiking in nature, yet I complain often while I do it. I mean, I complain in my non-talking style. For at least a mile I keep saying, “Go home”, yet I love the trails, the pretty scenery, the trees, the exercise, the pace, and the joy of my dogs. It is weird. I am really happy to be there but if we turned around I would go. Once I’m in a groove, I’m better. I know a guy who mostly leaves places right after arriving. He is overwhelmed and wants to flee. In autism the urge to flee is common. I think many people feel this way, like, “Get me out of here NOW!!”, but in autism we have a harder time ignoring the pressure of the moment. I think many people with autism feel overwhelmed and may try to escape. This is like a panic attack, in my opinion. If I feel relaxed I get no urge to flee. I know many autistic people get overwhelmed in places that are overly stimulating. In hiking it is different because I truly enjoy it. It is almost like a tic or something when I say “go home”, but I am glad my parents insist I walk the entire loop. It is lovely being ignored- ha ha- because my mouth isn’t speaking what I truly want.

You Can Also Visit Me at Facebook

Hi Readers,
You can also follow my blog through facebook at idoinautismland and give me a like.
Thanks for stopping by.
Ido